Interested in a cure for seizures? Here's where you can immediately help.

Feel free to share any of these posts. There are no copyrights on any of them, they are for anyone, anyplace, anytime for whatever reason. All of my love, from a man who just simply misses his son, and believes in the decency of people around the world,

Mike
**To reach the author of this blog Mike, the best email account is a silly one, but goes right to my phone. Technology is so cool. Its toiletoctopus@gmail.com. Thank you for reading this blog, and its been such a good project, in that it has helped others and me as well. May you all live life to the fullest, we have no idea when it shall be our last "dance."

With much love, I am proud of the Angelman Syndrome Foundation. If you can help them, and families with this condition, please consider donating to them at www.angelman.org. They are on Charity Navigator, and have done a phenomenal job over the years, on the awareness and research side.

Thursday, May 19, 2011

The Angelman Syndrome Foundation Walk: May 21st Be There!!!!

The Angelman Syndrome Foundation has the HIGHEST rating from Charity Navigator. That's right, they have hit the gold standard, and unlike some municipalities bond ratings, you do not have to worry about your generous donations going to waste. Former Prince George's County Maryland's Executive's wife, is not stuffing cash down her brassiere, or flushing checks down the toilet. The money raised is not going to Arnold's newly discovered child's slush fund, or to feed the dope habit of meth addicts on the street. No, there will be no Oliver North shredding going on, nor will there be any nonsense administrative costs, that are part of so many other charities.

Wouldn't you like to be a part of something special? If you have a child or loved one with Angelman Syndrome, you know firsthand that the ASF is fantastic. They are generating so much awareness, that you do not have to explain this condition to doctors anymore, and those of us with chrome domes, have an idea of what it is. There will be no stretching of the cerebral cortex, as folks who have learned what Angelman Syndrome is, have an appreciation for angels, and this foundation that started with humble beginnings. Thanks to Brian Harvey, a former relief pitcher of the Angels who I used to root against when he was against my beloved Boston Red Sox, this group got started. I don't think its a coincidence that he played for the Angels either, although I would have love to seen him throwing those 95 mph pitches for the Beantown boys.

In two days, that's right, May 21st the Angelman Syndrome Foundation will have events across the United States. Every year, the number of locations is growing, and unlike my chrome dome, it shows the potential to be in even more spots with each changing of the calendar. Its not too late to go, and while you may not get your walk t-shirt as the deadline has passed, get your tail movin' and get groovin'. That's right, get off your couch with that box of twinkies, walk a couple of miles, help a good cause, and get the best reward. This would be a hug from an angel. Years ago when I was devastated about my son's diagnosis, I got a hug from an angel named Dana. I cried so much on that first walk, but that hug brought nothing but smiles, the type that you can't get with any prize or anything else for that matter.

For those of you going to the Columbia, MD event. Yes, it is in the People's Republic of Maryland, but it is a bastion of love and joy on this momentous day. For those of you who live in VA, DC, MD, or other areas, don't make me call out Gunnery Sgt. Hartman aka Ermey from the movie "Full Metal Jacket" to wake you up by banging on a metal trashcan. Take the trek, you'll see an amazing event, that's full of joy, compassion, and a dedication to a great cause. While I am not going to wax my chest for this charity, I will be more than happy to sing you a tune, even if I got kicked off the church choir :). For more information, go to http://www.angelman.org/. Be there or be square!

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