Interested in a cure for seizures? Here's where you can immediately help.

Feel free to share any of these posts. There are no copyrights on any of them, they are for anyone, anyplace, anytime for whatever reason. All of my love, from a man who just simply misses his son, and believes in the decency of people around the world,

Mike
**To reach the author of this blog Mike, the best email account is a silly one, but goes right to my phone. Technology is so cool. Its toiletoctopus@gmail.com. Thank you for reading this blog, and its been such a good project, in that it has helped others and me as well. May you all live life to the fullest, we have no idea when it shall be our last "dance."

With much love, I am proud of the Angelman Syndrome Foundation. If you can help them, and families with this condition, please consider donating to them at www.angelman.org. They are on Charity Navigator, and have done a phenomenal job over the years, on the awareness and research side.

Tuesday, September 6, 2011

FAST (Foundation for Angelman Syndrome Therapeutics) Wins Vivint Contest


This past weekend, has been painful for the entire Angelman community due to children losing their lives to accidents and seizures. There have been a lot of tears, as if there wasn't already buckets enough over the years, but today was a reason to celebrate. FAST, Foundation for Angelman Syndrome Therapeutics, is an all volunteer organization that is working on finding a cure for this condition, which is caused by a partial deletion of chromosome 15. Today, due to voting of so many in the Vivint Company's contest, they have secured $250,000 in grant money to work on making a cure a reality. This is joyful news, and I make no bones about it, there's going to be a fine cigar lit up in celebration tomorrow due to this. To all of the families across the world that have an Angel or whom have been touched by one, this is a day for the history books in folks becoming empowered ,and this condition becoming much more understood as well.

I watched with anticipation on Vivint's internet feed, to see the Chairperson of FAST make a speech on behalf of this donation from this company, that truly does understand the importance of giving back. Other charities whom were helped by Vivint spoke about their organizations, and there were plenty of moving moments, and I was both crying and smiling at the same time seeing this. When Paula went on the stage, she spoke for the thousands of families across the world, and for angels as well, and although you couldn't see the halo, it was there. Her remarks were very touching, and I hope one day to get a chance to personally thank her, but for now this will have to do. The same for the sales staff and technicians, and all of the other employees at Vivint. Gosh, I hope I can thank you, and please understand that you might just get a hug. To know that salesmen and technicians, even in this tough economy were willing to donate commissions from hard earned sales to this effort, says a lot about their character.

Today is a good day. I look forward with anticipation, to seeing an already fine organization get even better, and grow in strength and influence. FAST is no doubt full of loving parents, whom want the best for their children, and that is a cure. This is one step closer to becoming a reality, due to the numerous folks across the world, who voted and partnered up with the compassionate souls at Vivint. There are celebrations tonight from numerous countries, and in the hearts of many people. Godspeed FAST, may you succeed in this endeavor and in others, and to an angel mom and all of the folks that participated in this, thank you for making the dreams of so many come true.

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