Interested in a cure for seizures? Here's where you can immediately help.

Feel free to share any of these posts. There are no copyrights on any of them, they are for anyone, anyplace, anytime for whatever reason. All of my love, from a man who just simply misses his son, and believes in the decency of people around the world,

**To reach the author of this blog Mike, the best email account is a silly one, but goes right to my phone. Technology is so cool. Its Thank you for reading this blog, and its been such a good project, in that it has helped others and me as well. May you all live life to the fullest, we have no idea when it shall be our last "dance."

With much love, I am proud of the Angelman Syndrome Foundation. If you can help them, and families with this condition, please consider donating to them at They are on Charity Navigator, and have done a phenomenal job over the years, on the awareness and research side.

Monday, February 11, 2013

Places of Peace for Grief

As the father of a child lost, I am surrounded by many good people, of which I am very grateful for. Many of these are people who have been down the same path, and have had to contend with the pain, that never truly does go away. Its always there, just that little cloud that never seems to dissipate, yet at the same time there are places of peace. I was saddened in the past few weeks, to hear of the passing of a six year old girl with Angelman Syndrome. While all children's deaths leave me sad, knowing that another with this condition, hits closer to home for whatever reason. I'm not sure if this is right or wrong, normal or not, it is simply just the way it is.

It will be soon time to take a walk by the ocean. This is a place of refuge, one of very few that provide me with feelings of peace. Years ago, long before I joined a large group of people who've lost a child, I fell asleep fishing in a chair by the ocean. It was a bit of a surprise, to wake up about fifty yards from the beach, and my friends who witnessed it were howling with laughter. I did too, later of course, but there is something about that rhythmic cascading of waves. The sound is music to the soul, and in a few months, I look forward to walking by the ocean on the Yucatan Peninsula. This is of course, the home of the Mayans and other great civilizations, and it is my hope to find comfort in not only the waves crashing, but also of the permanence of their foundations that stand strong thousands of years later.

Whether you find the ocean to be your place of comfort, whether you've lost a child or not, its up to you. As all of us are unique beings, we find spots that are replenishing to our souls. Every single one of us faces challenges, or crosses that we must bear in this life, that sometimes cause us more anguish than one thinks is possible. Yet getting to these places, such as the ocean, or that trail in the woods where the only noise is the birds, is important to each and every human being. Looking out at the ocean, I'm often struck by its size, and its not only a reminder of how small and insignificant I am, but also of the greatness of our creator. We are all blessed, even if there is pain along the walk, because those footsteps in the sand are proof that we do carry on regardless.

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