Interested in a cure for seizures? Here's where you can immediately help.

Feel free to share any of these posts. There are no copyrights on any of them, they are for anyone, anyplace, anytime for whatever reason. All of my love, from a man who just simply misses his son, and believes in the decency of people around the world,

**To reach the author of this blog Mike, the best email account is a silly one, but goes right to my phone. Technology is so cool. Its Thank you for reading this blog, and its been such a good project, in that it has helped others and me as well. May you all live life to the fullest, we have no idea when it shall be our last "dance."

With much love, I am proud of the Angelman Syndrome Foundation. If you can help them, and families with this condition, please consider donating to them at They are on Charity Navigator, and have done a phenomenal job over the years, on the awareness and research side.

Saturday, July 30, 2011

Thank you WINC 92.5 FM and Robert Allen: Shenandoah Valley of VA to D.C.

As a guy who's stuck in a car for long hours of time, I've always been happy to crank up Winc 92.5 FM. While the station's based in Winchester, a long haul from the confides of the Washington D.C. area, their frequencies strength has no problems whatsover in allowing me to tap my toes to their music. The past few months I have been in contact with Robert Allen, their News Affairs Director, and he's a kind man, whom one day I hope to thank in person. From his pictures, you can tell he's a lot of fun, and we shared quite a few laughs on the phone. This was due to the distance to the studio from where I live, and he showed an immediate interest in doing a show on Angelman Syndrome. He interviewed me over the phone about this subject, saved me a tank of gas, and is directly responsible for making this endeavor possible.

I am grateful for his efforts, as he is going to play this interview this weekend and next on Winc 92.5 FM, as well as two other stations in the Shenandoah Valley of Virginia. There are hundreds of Angelman families in the Virginia/D.C. area, and perhaps there are a few folks whom might get a diagnosis, or more information from this. While I may have not did a perfect job, I did do my best to get as many plugs in as possible for the Angelman Syndrome Foundation, what this condition entails, and how it affects families. It was a much more calming environment from the confines of my backyard rather than a studio this time, and Robert's professionalism and decency, made it go so smoothly. It means a lot to have folks like him willing to keep their word, and to allow a simple man an opportunity to generate awareness about Angelman Syndrome, and the foundation that has been a rock of support in good times and bad.

Thank you Winc FM 92.5 for being a friend to the Angelman Community. The same goes to Robert, who has helped out immensely, and is making sure that it gets a lot of air time. While we do not have the cure yet for Angelman Syndrome, or the seizures, progress is being made on a variety of fronts. With each person who hears about what it is, brings an increase in the chances of this dream becoming a reality. May that happen for those with Angelman Syndrome and their families, along with those who are trying to find a cure for conditions such as CDKL5, Rett Syndrome, Mowat Wilson Syndrome, and other genetic disorders that are becoming much more part of our lexicon than they were in the past. God bless the folks such as Robert at Winc, who have helped in more ways than can be expressed here, because we must do all we can to achieve success in cures and therapies that will help all with conditions that affect their quality of life.

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