Interested in a cure for seizures? Here's where you can immediately help.

Feel free to share any of these posts. There are no copyrights on any of them, they are for anyone, anyplace, anytime for whatever reason. All of my love, from a man who just simply misses his son, and believes in the decency of people around the world,

**To reach the author of this blog Mike, the best email account is a silly one, but goes right to my phone. Technology is so cool. Its Thank you for reading this blog, and its been such a good project, in that it has helped others and me as well. May you all live life to the fullest, we have no idea when it shall be our last "dance."

With much love, I am proud of the Angelman Syndrome Foundation. If you can help them, and families with this condition, please consider donating to them at They are on Charity Navigator, and have done a phenomenal job over the years, on the awareness and research side.

Saturday, January 7, 2012

Rocking the Purple: Suck Feizures Ski's 2012

Suck Feizures might sound harsh. Its meant to be. This facebook group, has folks with seizures, people who love someone with them, or has lost a loved one to seizures. It was created December 25, 2010 and has provided help and support to various epilepsy causes, both through awareness, and in generating funds for research. It has had a lot of amazing moments, and so much has been learned, that is hard to place a big star next to one event over the other. Yet this is the year, that we get together and ski. Feb 24-26 2012 is going to be both fun, and a period of reflection at Big Boulder Ski Resort.

"Epilepsy Awareness Weekend" it is, as the resort has been very kind, to help us make this possible. They are going to offer ski lessons, even adaptive ones if necessary, and two days of tubing, skiing, or boarding are going to be a lot of fun. It is a family friendly event, with ice cream socials, arts and crafts,free raffle, days out on the slopes, and of course an adult type of party at the Big Boulder Tavern on Saturday the 25th. Yup, the "red solo cup" from Toby Keith's song, are going to make their appearances. Designated drivers are already in place, so come one, come all, and show your spirit by wearing purple. That's right, the color of epilepsy awareness. It will not only be out at the slopes, but at the hotel, and the Big Boulder Tavern.

If you have any questions about this event, feel free to join "Suck Feizures", and although it might be too late to order the wonderful purple sweatshirts that a kind lady was able to make, its not too late to sign up for the trip. There are a few days left, to get a discount at the Comfort Inn right next to the resort in Whitehaven, PA, and this and the ridiculously low ski rates are due to Carmen, who understands the meaning of "rocking the purple." It is going to be a lot of fun, getting together, and seeing where this next adventure goes. This is about empowering those who have epilepsy or love someone with this condition, as 3% of the general population has this condition. Its time for it to go, and on the tops of the mountains in the Poconos, may that needle towards a cure move just a bit, and continue in that direction from there.

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