Interested in a cure for seizures? Here's where you can immediately help.

Feel free to share any of these posts. There are no copyrights on any of them, they are for anyone, anyplace, anytime for whatever reason. All of my love, from a man who just simply misses his son, and believes in the decency of people around the world,

**To reach the author of this blog Mike, the best email account is a silly one, but goes right to my phone. Technology is so cool. Its Thank you for reading this blog, and its been such a good project, in that it has helped others and me as well. May you all live life to the fullest, we have no idea when it shall be our last "dance."

With much love, I am proud of the Angelman Syndrome Foundation. If you can help them, and families with this condition, please consider donating to them at They are on Charity Navigator, and have done a phenomenal job over the years, on the awareness and research side.

Thursday, January 12, 2012

Angelman Syndrome, the Families Amaze Me

Every time I have been at an event, with children and adults who have Angelman Syndrome, I am amazed by the level of compassion displayed. It could be anything from the Walkathons to other, smaller events, but the power of these families has lifted me up during my darkest of hours. Angels, as we all know, require around the clock, 24/7 care, and even though this is necessary, they have the heart of champions. Their parents, grandparents, and friends do too. Even with this economy, cut services that all have to contend with, there is a "can do attitude," that inspires so many. Twenty years ago the Angelman Syndrome Foundation at was created, and what was once impossible, is now closer to reality than ever before. A cure or at least therapies that can help angels.

When the time comes, let's hope, let's pray, that the work of doctors and researchers around the world, can make this event happen. It doesn't matter what organization you belong to, that is involved in this effort, as everyone has their "pair of jeans" that they are most comfortable in. Rather what does, is supporting each other, giving researchers and others who knew our help, their support. A lot of them right now are working hard, and they specifically want, all of the enthusiasm that can be garnered, to be written to them, to folks in the pharmaceutical field, on social media, along with the conventional media that is still powerful. If that passion is lost, the work of a small group of people that over the years is simply unbelievable, do you really want it to go on the backburner?

I do not. We should not. Each and everyone of us, should be supporting each other, angel families, and also at the same time showing the passion that we have in a professional manner. We owe it to the children and adults who have this condition. It is imperative, now more than ever, as we get closer to these discoveries, to band together, and show the collective understanding that researchers and those working hard for a cure, need to see that we are walking hand in hand with them. The same goes for pharmaceutical groups, science based institutions, and your local representatives. They have got to constantly hear "Angelman Syndrome," until they all have discovered what this condition is, and are on board with us all. Angelman Syndrome is a condition that leads to loving people, and may we be more like them.

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