2.) Click on "Online Form" under "Give Online or By Mail"
3.) Fill out the form and make sure to include Angelman Syndrome research under the "Special Comments" section. They may also include any special instructions regarding the gift in this area.
Here is how you can directly help stop seizures, especially those related to Angelman Syndrome. The Vanderbilt Kennedy Center is at the forefront of research, and they need our help right now. Although a lot of institutions and pharmeceutical research groups are trying to find a cure, Vanderbilt directly serves the AS community. Every day families with an angel in their brood, are able to go here and get immediate assistance in stopping seizures. In addition to this, the Vanderbilt project has already provided potential medicine combinations, that have permanently stopped seizures in some patients. These were "hard cases," that neurologists and other specialists couldn't do much with, until Vanderbilt stepped up, and rendered assistance.
Times are tough right now, but if even a few folks could donate any amount, that will ultimately lead to new projects that hold the key to solving the riddle that seizures are. It will certainly support those in the Angelman community, but it might just go farther than that. The strengths of many are of the upmost importance, and even if everyone just made a small donation, it would lead to a cascading effect that could make all the difference in the world. A parent who brings in their child with Angelman Syndrome, will no longer feel powerless as their little boy or girl seizes up in front of them. There will be less hospitalizations, a decrease in developmental abilities that are often are sacked completely by these seizures, and a much better chance that a parent won't have to endure the trials and tribulations that follow losing a child to this activity in the brain. If you can help, please give as generously as possible, because this is one effective program, that's doing more than anyone else in the field of finding a cure for seizures.
Wow. I have just read all the pages of this blog and I am incredibly moved by your terrible difficulties, and your incredible faith. Thank you for the trust you are placing in us at Vanderbilt. It makes me want to work ever harder. Terry Jo Bichell
ReplyDeleteTerry,
ReplyDeleteLikewise I'm moved by what you are doing, and believe that your hard work, holds the key to this issue. While I do hope that a cure for Angelman Sydnrome is discovered, the first order of business is certainly stopping these seizures. A little girl this week passed away from an Angelman Syndrome seizure, and it just opens up old wounds that will never close fully, and that's okay.
Keep doing what you are doing, as it is incredible. While life certainly has road bumps, its what we do that matters. And you and the team of Vanderbilt are doing just that. Godspeed and best of luck :)
Mike