Interested in a cure for seizures? Here's where you can immediately help.

Feel free to share any of these posts. There are no copyrights on any of them, they are for anyone, anyplace, anytime for whatever reason. All of my love, from a man who just simply misses his son, and believes in the decency of people around the world,

**To reach the author of this blog Mike, the best email account is a silly one, but goes right to my phone. Technology is so cool. Its Thank you for reading this blog, and its been such a good project, in that it has helped others and me as well. May you all live life to the fullest, we have no idea when it shall be our last "dance."

With much love, I am proud of the Angelman Syndrome Foundation. If you can help them, and families with this condition, please consider donating to them at They are on Charity Navigator, and have done a phenomenal job over the years, on the awareness and research side.

Wednesday, March 23, 2011

Stop Seizures Now Blog is International-Across the Globe We Stand United

Argentina, Austrailia, Canada, France, Germany, Gibraltar,Greece, Ireland, Israel, Japan,Jordan, Malaysia, Morocco, New Zealand, Peru, Russia, Singapore, Spain, Sweden,  United Arab Emirates, United Kingdom, and the United States.

Thank you to all the people from these countries, who have read this blog. If for some reason I somehow missed your country, I apologize, but these are the ones listed by "Google's Tracker." Seizures do not care what the color of your skin is. Your religion need not matter either. Nor if you are old, grey, bald, young, blonde, or regardless of your beliefs. That's right, seizures do not discriminate, and we should stand united, in unison against this terrible menace. It is not going to be easy, but nothing is that accomplishes something, and to defeat seizures we are going to have bumps in the road along our collective journey. In many ways, if there was a bus that could fit all of us, we would have to hold on to each other during this ride, and if we do so we can win the war against seizures.

War is such a strong word. It usually accompanies bombs, soldiers, and a lot of blood. This is a different type of battle, that is based upon love, grit, and determination. I cannot bring my son Tommy back, who passed away from a seizure at the age of five. Others who have been in the "same boat" cannot either. You cannot walk backwards, but we can move forward. There is pain for us that have lost a child or loved one to a seizure. The tears are okay, and if you need to, by all means let them loose. Use that pain to do something productive, which is to not allow this to happen to someone else, and to also help those who live with epilepsy. They are suffering from these seizures, and they need are help now, not tomorrow.

There has been progress on the seizure front. Universities and research groups across the world are closer than ever. The one that I'm putting my bets on is Vanderbilt University's Kennedy Center (Angelman Seizure Project), due to the fact that they have had so many breakthroughs. Their staff is beyond dedicated. If you are familiar with the Geico insurance commercials with the big coffee cup mugs, that is what they are like down there in Tennessee. They are working around the clock, and are our best hope in finding that elusive cure, so that no parent will have to be devastated by the loss of a child, or a person having to learn new skills over and over again due to seizures interfering with their quality of life.

November 4th 2009 is the night my son Tommy was found unresponsive in his bed. I shall never forget this night, the trauma, the sheer pain that went through every essence of my soul. The heartbreak that I have heard from others who've lost a child due to a seizure, its just the worst, and I cannot believe that this effort against seizures is making such fast progress. I am so inspired by people that I have met, and been able to know through this. It isn't the road I expected to take, but the folks at various religious organizations, groups dedicated to finding a cure, or just individuals who've had to learn about resillience not by choice, have left me in awe. Thank you again to all who follow this blog, and a special appreciation to Darren(you got the ball rolling), and Brother Bill.(you showed me how to find resillience). God bless you all, and soon there will be new updates posted on seizure research.

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