The Go Fund Me Page for "Team Tommy" is up. You can find the direct hyperlink above, and its for a good cause. While the running shoes are on the way, as is the shirt, its never too early to start this effort. Most know Tommy Ross passed away five years ago, and while its not been easy, I'm just one traveler of many who's been down this painful road. A lot of kids with Angelman Syndrome or AS, have passed away due to accidents, seizures, or other related events due to this debilitating condition. Enough is enough, as its time for a cure. Its also a way to enjoy running, meet others, and learn their stories too. Each and everyone of us has a story, with chapters that are good and bad.
Tommy is missed. Other children are too, and each time when I run with the "Team Tommy" shirt whether practicing or at an event, I will be praying for all families that have lost a child. At the same time, I'll be praying for a cure for this condition, that was discovered by Dr. Harry Angelman and of course named after him. Both the Angelman Syndrome Foundation(ASF) and Foundation for Angelman Syndrome Therapeutics(FAST), are excellent organizations that are doing everything possible to move Heaven and Earth for a cure. They have also been helpful to families with someone who has AS, along with caregivers, teachers, friends, and a whole bunch of connections to other groups and research on the autism spectrum.
80% of money raised will go to FAST and the ASF, because these two groups are the leading edge of awareness and research. You can rest assured knowing your donations will go to responsible groups that believe in stewardship, and making sure each cent is delivered with full potential. Far too many charities out there have questionable alliances/motives, or administrative costs that make you wonder. Yet as I type this, I can sleep at night literally knowing that these two organizations exemplify the best of the best, and have the greatest chance of discovering a cure for AS.
20% is going to the Tommy Ross Memorial Fund. Yes, some money should go to those whom are less fortunate, to have an opportunity to engage in therapeutic or recreational programs. This has been set up by the truly lovely folks at the Maryland Parks and Recreation Association, whom my father used to be employed by. Their members have been extraordinarily kind, and knowing a few youngsters each year will get an opportunity otherwise unfulfilled, is beautiful beyond words. I thank each and everyone of you that share the Team Tommy GoFundMe Link, and appreciate your support with the upcoming races and outreach efforts. #Teamtommy
http://www.gofundme.com/iy51xo
No comments:
Post a Comment